May is Guillain Barre Syndrome awareness month.
An awareness meeting will be held on Saturday, May 11, from 1–4 p.m., to give support to people who have journeyed the road called Guillain Barre Syndrome.
This rare condition is actually not as rare as science has led us to believe. There are various forms of the ‘syndrome,’ varying from tingling in hands and feet, to being on a ventilator because it causes paralysis, to dying because the patient was not diagnosed soon enough. Since there is no common denominator beginning that can be pinpointed, it is referred to as a syndrome, not a disease.
Sometimes a definite starting point can be determined that can lead a person down the black hole of despair known as GBS. Other times, there is nothing that can be isolated as a ‘cause’ for it.
However a person ends up with it, it is important to know that there are others who have been subjected to the dragon known as Guillain Barre Syndrome, or by the name French Polio.
In attendance will be several people who have been struggling for a number of years with various forms of GBS, and are living with the ‘new normal’ that comes with the degree of recovery they are able to obtain. They will help you with questions, or just lend moral support. There will also be some video and brochures about GBS and how it is diagnosed and treated.
If you, or someone you know, has suffered with this debilitating disorder, stop in and tell us your story. Organizers want to help provide information and fellowship for anyone who has, or is, suffering.
May is GBS Awareness month, and there are too many people who suffer from this disorder, who just need someone to talk to.
The meeting will be held in the Citizen’s Connected (the telephone company in New Auburn) Community Room, accessed on North Columbia Street. Signs will be posted.
For directions, or questions, please contact Mike Kellen at 715.237.2134.
Coffee and cookies will be served.